Contact me

I started this blog to help me so I could write about what we have gone through with our little pirate but also to help others. So many people have helped me by writing blogs and telling me what to expect and how to deal with surgery/contacts/glasses/doctors/patching and so much more!

If you have any questions about congenital cataracts let me know. I would love to help. Especially if you have a little one who has congenital cataracts! Im here for anyone who needs help. Even if it is just to complain or you need someone to cry to because you cannot get a contact in. 😉 I’ve been there!

Send me an e-mail at :


6 responses to “Contact me

  1. saw your story on the Today show. i LOVE that you have done this for your sweet, sweet son. What a lucky boy he is to have a mommy like you! He is adorable. I’m so glad you found a way to feel comfortable with the stares and questions that, unfortunately, people seem to be OK with sharing. And how awesome you are to help him feel good about himself! I wish you all the luck in the world both with Scott’s health and your journey to help others.

  2. Thank you!!!! My little girl just turned 5 in June. She had a congenital cataract that we found at 4 months of age after I pestered the pediatrician about her droopy eye lid. She also has Ptosis, Astigmatism, and Amblyopia. We have been patching off and on since her first eye exam at 4 months old. You are right, there are a lot of us out there and don’t have support! My little girl has gotten the stares and the questions/comments about being a “pirate baby”. She was able to go without patching for about 18 months but is now patching again. She now tells anyone that asks about her patches that she is exercising her eye.

  3. Hey I just came across your article on yahoo and came and visited your site, awesome work. My daughter does wear contacts, cause she is near sighted but doesn’t need a patch, b!ut I just wanted to say keep up the good work and I will keep visiting and will be happy to share….Have a great day! Toronto, Canada.

  4. Hi there,
    I am a mom of a son who was born with a birth defect almost 4 years ago called an omphalocele (abdominal wall defect). I chronicle our journey from finding out at 13 weeks pregnant to today now a happy, healthy, big brother.
    My son and I were watching your piece on the Today show about your adorable little boy and your clothing. When the segment ended Jackson looked at me and said, “Mom I want an eye patch.” YOU are making a difference, teaching empathy…thank you!

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